In memory - HLH

My sister Heather died very unexpectedly from complications caused by unexplained internal bleeding in December of 2004.  It was discovered after her death that she had the vascular type of Ehlers-Danlos Syndrome, a connection tissue disorder characterized by weak, lax joints, stretchy skin and easy bruising.

As part of Heather's legacy, I spend time spreading the word about this unfamiliar, often misdiagnosed condition, in the hopes of saving another person's life. 

A former coworker in Texas became familiar with the condition when her infant daughter sustained multiple unexplained fractures and her husband was wrongly accused of child abuse.  It turns out, both Bria and her daughter had the condition.

Hear about Bria and Andrew's Story here.